North & West Yorkshire ASBAH
North & West Yorkshire ASBAH provide ongoing support to children, adults, and families who are affected by the diagnosis of Spina Bifida and/or Hydrocephalus.
Our purpose is to alleviate the suffering and distress caused by the isolation of living with a disability. We create, and facilitate, safe and accessible peer supported groups for our community. Bringing people together with shared lived experience so they can become part of sustainable support networks, feel better connected, take control, flourish, and thrive.
With the Right Support, Great Things Can Happen
Spina Bifida
literally means “split spine”. It is a congenital (present at birth) condition which occurs in very early pregnancy when a fault in the development of the spinal cord and surrounding bones (vertebrae) leaves a gap or split in the spine. The spinal cord does not form properly and may also be damaged. The effects of Spina Bifida depend on the level of the fault in the spine and which nerves are involved.
Hydrocephalus
Comes from the Greek words “hydro” meaning water and “cephalic” meaning brain. It is caused by a build up of cerebrospinal fluid (CSF) in the ventricles of the brain resulting in increased pressure. Hydrocephalus can be congenital (present at birth) and caused by, for example, aqueduct stenosis or Dandy Walker cysts, or it can be acquired after birth as a result of, for example, a haemorrhage (stroke), prematurity, Meningitis, a head injury, tumours, or in association with Spina Bifida. Sometimes the cause is unknown. Hydrocephalus can lead to problems that affect everyday life such as difficulties with concentration and short term memory, co-ordination, motivation, and organisational skills. Most forms of hydrocephalus require treatment. This is usually surgical and involves inserting a shunting device to drain the excess CSF.
What our wonderful members say
Adult with Spina Bifida
"Speaking with the ASBAH Team helps me feel supported when I'm low, and encourages me to try new activities"
Parent of a child with hydrocephalus
“Having a disabled child, you become so isolated, knowing ASBAH is there makes you realise you are not alone”
Parent of a baby with Hydrocephalus.
“ It’s refreshing to have a platform where you can talk, and everyone understands”
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